Things are moving along in te recovery process but it’s slow. My digestion is better and I don’t have any pain. Fatigue is the big obstacle now. I’m supposed to sit up as much as possible but it’s so tiring. I never thought sitting up could be a workout. I’m trying a bit more each day but am spending a lot of time hogging the entire couch.
Today I felt well enough to play some board games with my family. I’ve been so extremely lucky to have then here helping me recover. It’s made such an incredible difference in my recovery having them by my side through this.
Care team Cutilletta:
front row- Joey (my wonderful niece), sisters Laura and Jenny. Sloths Sergio and Sven
back row – Mom, me, Dad and Jeff
I’m doing well and it feels so great to be out of the hospital! I’ve done nothing but rest today with breaks to eat. Jeff has been great making me yummy food. My strength is coming back slowly and my digestion is sorting itself out. My parents came by earlier. And my sisters will visit this evening.
I’m out of the hospital!! I got dishcharged and am now in an air bnb with Jeff. Getting from the car to the Airbnb door took Jeff, Laura, Jenny, a walker, and many breaks. But I made it! I’m so tired but so happy!!!
me and my great PY Ady
Today I truly felt back to myself. Everything is improving, I’m off oxygen. I’m off pain killers, they took out the catheter. Walking is still slow I need a walker and someone to bring a wheelchair to sit in to take breaks.
Unfortunately, I still have diarreah and need a walker and a nurse to get to the bathroom. And yes, the problems you can imagine with that scenario have happened.
Since I don’t need as much support, the sloths have gotten into some trouble.
eating flowers
Playing with my breathing thing.
Sven tried to teach Sergio the ropes of support slothing.
But all Sergio cared about was that he didn’t get a name tag like my parents. My dad lent him his. Sergio insisted we call him Tom.
Sheryl’s improving again today. She took a longer walk. Struggling a bit with gastrointestinal things but that perhaps is getting better too. :/
Her parents are in from Atlanta. Her sister Laura from the Bay Area lives here. And Friday her sister Jenny arrives from Chicago. So she’s got the whole family supporting her.
As well as her occupational therapists…
It’s likely she’ll be leaving UCSF medical center on Friday.
Sheryl asked me to give you the update today. She’s tired and trying to stay off screens. This was the day we had anticipated Sheryl would leave the hospital, but some things are progressing a little slower and so it will likely be Thursday or Friday of this week. But each day there is progress. She walked a bit more today. Some digestive issues are clearing up. There’s still some issues with blood oxygen numbers, but that’s well controlled with extra oxygen through tubes in the nose (no idea what that is called).
Today was good. Not as much progress as yesterday. The day started off with my respitory therapists having me use this to blow into for fun to strengthen my lungs. But my the end of another day of not walking around its become a need to do.
Sven and Sergio zoomed with their brother Rodrigo in Seattle. They had a nice meetup.
Then my parents and sister visited. Jeff visited in the morning but I didn’t get a c photo of him. He was too busy being amazed at my respitory prowness.
Thank you everyone for reading and commenting. Im too tired to respond but Im reading all the comments.
Cancer no more in ’24
Today was a good day for me. I was able to get out of bed and take about 20 very wobbly steps with a walker. But it was progress. I’m also back on solid food and off one of my pain meds.
It was an even better day for Sven who was reunited with his half brother Sergio. Sven and Rodrigo (Sven’s brother who lives in Seattle) all have the same father but Sergio’s mother was a pygmy sloth that’s why he’s smaller. He’s having Sven train him in how to be a support sloth.
My sister Laura, brother-in-law Jesse and niece Joey also visited.
Yesterday was rough. I was in a lot of pain and couldn’t get up and walk around. Every time I tried with the nurse’s help I almost fainted. Getting me to this chair was a big deal.
I also had this guy come in and play me a song on his dulcimer. It was really nice, but similar to when Christmas carolers come to your door.
This duplicate photo is on here because I can’t figure out how to delete.
This next picture is from the first night. You can see the pain killlers were workimg
Today is going better. Still can’t get up but I’m in less pain.
Cancer no more in ’24
That’s my new slogan
