Not too much to report. Everyday I improve but it’s not as noticable. I’m still pretty weak. I lost blood during surgery and was on the boarderline for a blood transfusion. My doctor opted not to give me one which is good but its taking awhioe for my body to make more.
I am however back to drinking coffee which is great.
It dawned on me today that since they were able to get all the cancer, the number of days post surgery are also the days I’ve been cancer-free!
Today I was able to go up the 6 steps that led to the backyard. It felt so great to sit up outside. Although after two hours I was so wiped out my knees were shaking on the walk back in. But after many hours of resting I’m feeling good.
Everyday is getting better. Today I was able to walk around the Airbnb without the walker.
This deep dish Chicago style pizza, was also really good medicine.
Things are moving along in te recovery process but it’s slow. My digestion is better and I don’t have any pain. Fatigue is the big obstacle now. I’m supposed to sit up as much as possible but it’s so tiring. I never thought sitting up could be a workout. I’m trying a bit more each day but am spending a lot of time hogging the entire couch.
Today I felt well enough to play some board games with my family. I’ve been so extremely lucky to have then here helping me recover. It’s made such an incredible difference in my recovery having them by my side through this.
Care team Cutilletta:
front row- Joey (my wonderful niece), sisters Laura and Jenny. Sloths Sergio and Sven
back row – Mom, me, Dad and Jeff
I’m doing well and it feels so great to be out of the hospital! I’ve done nothing but rest today with breaks to eat. Jeff has been great making me yummy food. My strength is coming back slowly and my digestion is sorting itself out. My parents came by earlier. And my sisters will visit this evening.
I’m out of the hospital!! I got dishcharged and am now in an air bnb with Jeff. Getting from the car to the Airbnb door took Jeff, Laura, Jenny, a walker, and many breaks. But I made it! I’m so tired but so happy!!!
me and my great PY Ady
Today I truly felt back to myself. Everything is improving, I’m off oxygen. I’m off pain killers, they took out the catheter. Walking is still slow I need a walker and someone to bring a wheelchair to sit in to take breaks.
Unfortunately, I still have diarreah and need a walker and a nurse to get to the bathroom. And yes, the problems you can imagine with that scenario have happened.
Since I don’t need as much support, the sloths have gotten into some trouble.
eating flowers
Playing with my breathing thing.
Sven tried to teach Sergio the ropes of support slothing.
But all Sergio cared about was that he didn’t get a name tag like my parents. My dad lent him his. Sergio insisted we call him Tom.
Sheryl’s improving again today. She took a longer walk. Struggling a bit with gastrointestinal things but that perhaps is getting better too. :/
Her parents are in from Atlanta. Her sister Laura from the Bay Area lives here. And Friday her sister Jenny arrives from Chicago. So she’s got the whole family supporting her.
As well as her occupational therapists…
It’s likely she’ll be leaving UCSF medical center on Friday.
Sheryl asked me to give you the update today. She’s tired and trying to stay off screens. This was the day we had anticipated Sheryl would leave the hospital, but some things are progressing a little slower and so it will likely be Thursday or Friday of this week. But each day there is progress. She walked a bit more today. Some digestive issues are clearing up. There’s still some issues with blood oxygen numbers, but that’s well controlled with extra oxygen through tubes in the nose (no idea what that is called).
